Get ready for an unforgettable evening at the Cars4Cause ALS Benefit Concert, featuring the electrifying sounds of GA-20 and opening act Dylan Zangwill! This night will unite music lovers and car enthusiasts for a night of soulful blues and community spirit!
Purchase tickets and VIP packages here!
Join us for the 7th Annual Gala of Hope on April 5, 2025, at Vie in Philadelphia as we come together to celebrate and express our deepest gratitude for the unwavering support and dedication of our incredible community in the fight against ALS. This year’s event promises an elegant evening filled with delicious food, refreshing drinks, and lively dancing, all in the spirit of gratitude and hope.
We are thrilled to announce that Jeff Kurkjian, cohost of The Andie Summers Show on 92.5 XTU, will serve as our Emcee. Jeff’s personal connection to our mission, having lost his beloved Uncle Matt to ALS in 2023, drives his passion to support the ALS community. Along with his father, ESPN’s Tim Kurkjian, Jeff also hosts the podcast Is This A Great Game, Or What?
The night will be especially moving with Doug Hill, an ALS warrior, devoted husband, and father of three beautiful girls, as our keynote speaker. Doug’s inspiring journey will remind us all of the strength and resilience of those living with ALS, and why we continue to fight for groundbreaking research and vital support for patients and their families.
For tickets and sponsorship information visit: Gala of Hope
Throughout the evening, we will raise awareness, celebrate the efforts of those dedicated to the cause, and recognize the incredible contributions that continue to make a difference in the lives of individuals living with ALS. This event is not just a night of gratitude, but also a powerful reminder of why we are united in the fight against ALS.
Your presence and contributions mean the world to us as we continue to make strides toward our mission.
We can’t wait to share this unforgettable evening of gratitude, celebration, and hope with you. See you there!
To purchase tickets or support our cause visit: Gala of Hope
Join us for the 21st Annual Research Update and Awards Luncheon!
We are honored to welcome Dr. Richard Bedlack, who will present the latest developments in ALS research. Known for his patient-centered approach and research on ALS reversals, Dr. Bedlack is recognized for his colorful, unique style. He actively engages with the ALS community through social media, advocacy, and clinical trials aimed at improving the quality of life for patients and exploring potential treatments.
We invite you to this complimentary event where you'll learn about the latest advancements in ALS research and the impact of your support in keeping HOPE on the Horizon.
Event Details:
- Date:Sunday, May 4, 2025
- Time: 11:00 AM - 2:30 PM ET
- Location: The Inn at Villanova, 601 County Line Road, Wayne, PA
We look forward to seeing you there and sharing this important journey together!
Save the Date!
Our 7th Annual Run for Hope 5K will be held on May 18th, 2025
This is not our Hope Walks event, but walkers are welcome!
Join us for the End the Legacy Summit!
Building on the success of our first summit in 2024, the Genetic ALS & FTD community is coming together once again for an in-person summit. This is your opportunity to network, connect with others, and gain valuable skills to help build a movement for our lives.
Event Details:
Date: June 6 - June 8, 2025
Location: The Hotel West & Main, Conshohocken, PA
Hosts: ALS Hope Foundation and Temple University
A nominal registration fee of $75 covers food and full conference attendance.
For any questions, please email info@endthelegacy.org.
Purchase Tickets: Click here to secure your spot!
We look forward to seeing you there and continuing our journey together!
Join the MCLA Women’s Ice Hockey Team ALS Charity Game on February 15th at the Vietnam Veterans Memorial Skating Rink at 5pm. From this game and your donations the proceeds will be shared between the ALS Hope Foundation and The MCLA Women’s Ice Hockey Team. Your donations will help those affected by this horrible disease and help the foundation further the research to hopefully someday find a cure.
"This disease is near and dear to our hearts. It personally affects a member on our team whose father was diagnosed in February 2023. Seeing how this disease has affected her father and his quality of life has been quite difficult for her and her family. We are hosting this game in hopes to raise awareness and money to the ALS Hope Foundation. Thank you for your support."
Thank you MCLA Women’s Ice Hockey Team for your generosity and support!
Help the MCLA Women’s Ice Hockey Team and the ALS Hope Foundation by making a donation here.
Helpless Heartbreakers | The Music of Neil Young & Tom Petty to support The ALS Hope Foundation, Gino Carosella Fund
Join us Saturday, January 11, 2025, 7:30 opening, at The Royal for "Helpless Heartbreakers: A Celebration of The Music of Neil Young & Tom Petty." This is their 4th fundraiser to support the Gino Carosella Fund. All proceeds from the sale of tickets ($25) will be donated to the Gino Carosella Fund which provides assistance for Hope Bridges, our crucial home care program supporting families impacted by ALS.
Buy your tickets here!
The Goldsberry’s ALS Journey
Date: Thursday, November 28
Time: 9:00 AM - 10:00 AM
Location: Edge Fitness of Plymouth Meeting, 500 W. Germantown Pike
Join us for a special ThanksGiving Morning Boot Camp! Get a head start on your Thanksgiving celebrations with an invigorating workout session designed for all fitness levels. Whether you're a fitness enthusiast or just starting out, this boot camp welcomes everyone.
Non-Members Welcome! This event is open to the public, so bring your friends and family along. It's the perfect way to kick off the holiday while supporting a great cause.
All Proceeds Go to the ALS Hope Foundation and the Joshua Tkachuk Memorial Fund! Every dollar raised from this event will go directly to support ALS research and programs, as well as honor Joshua’s memory. This is a fantastic and touching way to celebrate the holiday while making a difference in the lives of those affected by ALS and remembering Joshua.
Scan to Donate! Can't make it to the event? You can still contribute by scanning the QR code to make a donation.
Don't miss out on this fun and impactful event! See you there!
📢 Join us for a special Day of Giving with Defensive Lineman Dvon J-Thomas! 🏈💪
Together, we can make a difference. Your donation will help support critical research and provide essential services for those battling ALS. Let's tackle ALS as a team!
Donate now and be part of the change. Every contribution counts! 🌟
Join us for an enlightening series of discussions aimed at fostering understanding and support for individuals with ALS and other neurological disabilities.
Host: Wendy Hendrickson
Mission: To educate, raise awareness, and facilitate conversations between first responders and individuals with ALS and other neurological disabilities.
Location: North Wales Library
Event Series: Thoughtful Thursdays
Come together with community members, first responders, and experts in the field for a thoughtful and informative evening. Your participation helps create a more inclusive and informed community.
Text 'GIVING2024* to 50155
Dvon J-Thomas and the ALS Hope Foundation are coming together on Giving Tuesday., December 3rd, 2024 to benefit the ALS Hope Foundation.
We invite you to join us on a journey of immediate and long-term impact, where together, we can continue to break barriers towards eradicating ALS for good.
Your donation DIRECTLY impacts the patients' treatment to provide the highest level of care and services at the MDA/ALS Center of Hope, and further ongoing critical lab research necessary to continue working towards a permanent cure in ALS.
We are just a few weeks away from Don's Day of Giving. We kindly ask that you help raise awareness, as we prepare to come together as a community for this worthy cause. On behalf of Dvon J-Thomas and the ALS Hope Foundation, we are on a mission to build a brighter future and make permanent change.
#WhereHelpandHopeMeet
Join us for
Hope Walks for ALS Family Fun Day!
Temple Ambler Campus on
Sunday, September 29, 2024!
Schedule of Events:
9:30 AM Check-in, get your T-shirt and find your Team!
10:30 AM Welcoming remarks, Walk Chair Mike O'Brien, awards!
10:45 AM Walk begins!!
11:00AM Family Fun Day is also taking place!
12:00 PM Raffle Winners announced!
12:30 PM Walk concludes! Thank you for coming! Go Birds!
Join us Saturday, July 27, 2024 for the 3rd Annual Colleen’s Classic for ALS at the beautiful Gambler’s Ridge Golf Club in Cream Ridge, NJ!
Registration: 12:00PM
Shotgun Start: 1:00PM
Dinner: 6:00PM
$100,000 Hole-in-One Contest and More!
The Genetic ALS & FTD End the Legacy Community Summit will be held in Chicago June 7-9, 2024 with host Les Turner ALS Foundation. This landmark event brings together dedicated team members, those impacted by genetic ALS & FTD, and interested individuals for a weekend of connection, learning, and advocacy.
"Program highlights include:
Connection: Meet and connect with others affected by Genetic ALS & FTD, creating valuable bonds and sharing experiences.
NEALS Training: Learn from top research clinicians and become a NEALS Research Ambassador through the Clinical Research Learning Institute Curriculum.
Skill Building: Attend panels focused on patient advocacy, including lessons from other patient movements, family communication about shared risks, and storytelling for different audiences."
Save the Date!
Our 6th Annual Run for Hope 5K will be held on
Sunday, June 2, 2024 at
Norristown Farm Park, Norristown, PA 19403
This is not our Hope Walks event, but walkers are welcome!
You are invited to the 20th Annual Research Update and Awards Luncheon!
Please join us at this complimentary event where we will share the latest in ALS research and how your support has helped us keep HOPE on the Horizon! Our guest speaker will be Dr. Jinsy A. Andrews, Associate Professor of Neurology, in the Division of Neuromuscular Medicine, and Director of Neuromuscular Clinical Trials at Columbia University in New York City.
Sunday, May 5, 2024 11:00am - 2:30pm ET
The Inn at Villanova 601 County Line Road Wayne, PA 19087
The ALS Hope Foundation will be offering a special educational opportunity, the ALS Clinical Research Learning Institute (CRLI®), on March 15-16, 2024. The CRLI is an intensive 2 day program dedicated to educating attendees on the clinical research process, therapy development, the treatment landscape and advocacy in order to empower this group to be advocates for ALS clinical research. This program was conceived by Dr. Richard Bedlack through collaboration with the Northeast ALS (NEALS) Consortium including 5 previous Philadelphia programs through the ALS Hope Foundation. People living with ALS along with their caregivers are invited to participate in this program and graduate as "Research Ambassadors" and ALS advocates.
Learn more about the program on the NEALS website.
Read an article on the CRLI, ALS clinical research learning institutes (ALS-CRLI): empowering people with ALS to be research ambassadors.
People living with ALS (PALS), Caregivers of people with ALS (CALS), and surviving family members are encouraged to apply. All PALS are invited to attend with one caregiver.
The application can be found here. Please submit your application to Jamey Piggott at jamey@alshopefoundation.org.
Join us for the 6th Annual Gala of Hope!
Saturday, February 24, 2024 5:00PM-10:00PM ET
Vie by Cescaphe, 600 N Broad Street, Philadelphia, PA 19130
Join us for an evening filled with good food, drinks, live entertainment, a silent auction and more!
Hear from speakers John Sweeney, a person living with ALS, and Dr. Terry Heiman-Patterson, ALSHF President.
We will be honoring our 25 years of serving the ALS community.
We look forward to sharing this beautiful evening of HOPE with you!
Join us virtually on Facebook as musicians and their families create music for a fundraiser supporting the ALS Hope Foundation and End the Legacy.
Join us for a truly exceptional event that combines the joy of golf, the delight of brunch, and the spirit of giving! On October 8th, from 10:00 AM to 1:00 PM, we're hosting an event at Top Golf in King of Prussia that promises a memorable day of fun and support for a great cause.
Event Details:
Date: Sunday, October 8, 2023
Time: 10:00 AM - 1:00 PM
Location: Top Golf King of Prussia
What to Expect:
1. Golfing for a Purpose: Whether you're an avid golfer or a newcomer to the sport, this event is designed for everyone. Top Golf's state-of-the-art facilities provide a fantastic golfing experience, ensuring that all skill levels can participate. Tee off for a full three hours, perfecting your swing all while supporting ALS research and the Dr. Robert J. Sinnnot Research Lab.
2. Brunch Delights: As you work up an appetite on the green, enjoy an array of delicious breakfast and brunch dishes as well as our mimosa bar!
3. Making a Difference: All proceeds from this event will go directly towards the Dr. Robert J. Sinnott Research Lab for ALS research. Your participation will contribute to making a significant impact in the lives of those affected by ALS.
This workshop, organized by Michael Benatar and Terry Heiman-Patterson, will bring together diverse stakeholders across the ALS and FTD community, including clinicians, scientists, genetic counselors, ethicists, and members of the at risk genetic ALS/FTD community, to develop guidance for the clinical management of individuals at significantly elevated genetic risk for ALS and FTD. With increasing knowledge of the genetic causes of ALS and the more routine use of clinical genetic testing in the ALS patient population, we are seeing an increasing number of family members seek pre-symptomatic testing. Moreover, many of those found to carry a genetic mutation are seeking clinical care, with questions about off-label use of FDA approved medications and lifestyle modifications. In the absence of good evidence, it is critical to develop guidance for clinicians who are tasked with providing care for these individuals at significantly elevated genetic risk for ALS and FTD. The goal of this workshop is to begin to develop these guidelines and identify the gaps in knowledge.
The ALS Hope Foundation is pleased to present the 16th Annual Hope Walks for ALS on September 10, 2023 at Temple University’s Ambler Campus!
This event provides much needed funds to support the clinical, research and educational efforts of the ALS Hope Foundation and is the only walk that supports the work of the ALS Hope Foundation and the team at the MDA/ALS Center of Hope.
Our team wants to see your team!
Click here to sign up your team today!
Join the Lancaster Barnstormers for an exciting evening of baseball and advocacy as we come together with the ALS Hope Foundation to raise awareness and support for ALS (Amyotrophic Lateral Sclerosis) research and patients. ALS Awareness Night at Clipper Magazine Stadium aims to spread awareness about this devastating disease while celebrating the strength and courage of those affected by ALS.
Date: August 17th
Time: Gates open at 5:30 PM Games starts at 6:30 PM
Location:Clipper Magazine Stadium
A portion of all ticket sales will benefit the ALS Hope Foundation!
Únase a nosotros para una velada musical que celebra la música latinoamericana y crea conciencia sobre la ELA y las enfermedades neurodegenerativas en la comunidad latina.
Sábado, 17 de Junio, 6PM ET
La Fundación ALS Hope se complace en presentar el Concierto de Esperanza el 17 de junio a las 6:00 p. m. en el Teatro Esperanza. Este concierto contará con una amplia variedad de música latina que celebra la rica herencia musical de la comunidad y crea conciencia sobre la ELA y las enfermedades neurodegenerativas. Esperamos que más de 300 miembros de la comunidad latina asistan al concierto y disfruten de la noche mientras aprenden sobre la ELA y las enfermedades neurodegenerativas y el Centro de Esperanza de ELA y Enfermedades Neurodegenerativas de la Escuela de Medicina Lewis Katz de la Universidad de Temple, que es un recurso local donde Brindaremos excelencia en la atención de una manera centrada en el paciente y culturalmente sensible.
El concierto presentará nuestro programa de equidad en la salud que se está desarrollando en colaboración con el Centro ALS de Esperanza en la Facultad de Medicina Lewis Katz de la Universidad de Temple. Los datos de la Universidad de Emory y la Universidad de la Commonwealth de Virginia han demostrado que hay retrasos en el diagnóstico de la ELA en la comunidad negra, lo que se traduce en un tratamiento retrasado con los medicamentos disponibles que ralentizan la enfermedad sin detener su progresión. Se está realizando un trabajo similar en la comunidad latina, al igual que la investigación sobre la aplicación de otras intervenciones que prolongan la supervivencia y mejoran la calidad de vida en poblaciones subrepresentadas. Este programa se centrará en la alfabetización de la atención médica sobre la ELA y los trastornos neurodegenerativos tanto para los proveedores de atención médica como para los miembros de la comunidad en las comunidades latinas y negras que rodean la Universidad de Temple. Además, estamos trabajando para proporcionar un fácil acceso centrado en el paciente a la atención multidisciplinaria en entornos culturalmente sensibles que brindarán excelencia en la atención de la ELA y las enfermedades neurodegenerativas.
Todos bienvenidos! Entrada gratuita, se agradecen las donaciones.
El concierto cuenta con: Alexa Anderson, soprano; Elizabeth Patterson, soprano; Celeste Camarena Mojica, mezzo soprano; Sergio Gonzalez, tenor; Gabrielle Rebolla, piano; Igor Vieira, baritone; and The Ensemble of Hope.
Join us for a musical evening at Teatro Esperanza celebrating Latin American music and raising awareness about ALS and Neurodegenerative Diseases in the Latino community.
This concert will feature a wide variety of Latin music celebrating the rich musical heritage in the community while raising awareness about ALS and Neurodegenerative diseases. We are expecting more than 300 members of the Latino community to attend the concert and enjoy the evening while also learning about ALS and Neurodegenerative diseases and the ALS and Neurodegenerative Disease Center of Hope at Temple University Lewis Katz School of Medicine which is a local resource where we will provide excellence in care in a patient centric and culturally sensitive manner.
The concert will introduce our health equity program being developed in collaboration with the ALS Center of Hope at Temple University Lewis Katz School of Medicine. Data from Emory University and Virginia Commonwealth University has shown that there are delays in diagnosis of ALS within the black community which translates to delayed treatment with available medicines that slow the disease down without stopping the progression. Similar work in the Latino community is underway as is research on application of other interventions that prolong survival and improve quality of life in underrepresented populations. This program will focus on healthcare literacy about ALS and neurodegenerative disorders for both healthcare providers and community members in Latino and Black communities surrounding Temple University. Additionally, we are working to provide easy patient-centric access to multidisciplinary care in culturally sensitive settings that will provide excellence in the care of ALS and neurodegenerative diseases.
All are welcome! Admission to the event is free. Donations are appreciated.
The concert features: Alexa Anderson, soprano; Elizabeth Patterson, soprano; Celeste Camarena Mojica, mezzo soprano; Sergio Gonzalez, tenor; Gabrielle Rebolla, piano; Igor Vieira, baritone; and The Ensemble of Hope.
Join us Saturday, June 17, 2023 for the 2nd Annual Colleen’s Classic for ALS golf tournament at the beautiful Gambler’s Ridge Golf Club in Cream Ridge, NJ!
Registration: 12:00PM
Shotgun Start: 1:00PM
Dinner and Awards: 6:30PM
$10,000 Hole-in-One contest and more!
Join us for our 5th Annual Run for Hope 5K!
Sunday, June 4, 2023
8AM ET Run Start
Norristown Farm Park
Timed 5K and an optional 1 Mile Walk!
You are invited to the Research Update and Awards Luncheon.
Join us as we hear from our guest lecturer, Dr. Matthew Harms, learn about the work of the ALS Hope Foundation, and thank our supporters!
Sunday, May 21, 2023 11:00am - 2:30pm ET
The Inn at Villanova 601 County Line Road Wayne, PA 19087
Guest Speaker: Dr. Matthew Harms
Dr. Matthew Harms is a neuromuscular neurologist and neurogenetics expert focused on ALS and related motor neuron diseases. Dr. Harms’ lab applies cutting-edge genetic sequencing technologies to discover new genes, define the frequency and range of genetic mutations in ALS, and characterize links between specific mutations and specific types or manifestations of ALS. He is the Director of Precision Medicine Initiatives at Columbia University, Director of the Neurogenetics Program in the Department of Neurology, and Associate Director of the Eleanor and Lou Gehrig ALS Center."
Join us for the 5th Annual Gala of Hope!
Saturday, April 15, 2023, 6:30-11:30PM ET
VIE by Cescaphe 600 N Broad St, Philadelphia, PA 19130
Join us for an evening filled with good food, drinks, live entertainment, a silent auction and more!
Guest speakers to include our president Dr. Terry Heiman-Patterson, Temple Health representatives and Joel Goldhirsch (virtually) a person living with ALS who will update us on the the work we have been doing with his named funds in collaboration with Your ALS Guide.
Our Keynote Speaker, Dr. Stacy Lewin Farber, will share her personal experience with ALS.
We look forward to sharing this beautiful evening of HOPE with you.
The ALS Hope Foundation and the MDA/ALS Center of Hope at Temple Health invite you to attend our Remembrance and Reflection Memorial Service
Sunday, March 19, 2023 11:00AM ET.
This event will be held both virtually and in-person.
The Inn at Villanova University 601 County Line Road, Wayne, PA 19087
Light refreshments will be served.
Please RSVP to Paris DiLorenzo by March 13, 2023 paris@alshopefoundation.org or 215-568-2426.
If you prefer to attend virtually, a zoom link will be sent out when you RSVP.
Photo by John Bussell on Unsplash
Saturday, February 4, 2023
6:00pm - 11:00pm
The 50in1 Bar Crawl for ALS returns across the country! Join Team, Hope on Tap, at Xfinity Live in Philadelphia! Help support ALS Hope Foundation, Hope Loves Company, and the Joan Dancy Foundation and be a part of what will be the largest party in the country that day! This Philadelphia crawl will feature karaoke, silent disco, live bands, a mechanical bull, a silent auction, and many food and drink specials.
Rescheduled!
The first annual Colleen’s Classic for ALS will take place on Saturday, October 29, 2022 at Gambler Ridge Golf Club!
Event Agenda:
11:00 AM Registration and Practice
12:00 PM Shotgun Start
5:30 PM Dinner, Awards, Door Prizes and more!
Come out to Ginopalooza on October 20, 2022 at the Royal to enjoy a celebration of life lived to the max! There will be featured music of Pearl Jam and many others.
Tickets are $25 and all proceeds will benefit The Gino Carosella Fund!
The ALS Chocolate Meltdown Party is back!
Join us Friday, September 23, 2022 at the Adventure Aquarium in Camden, NJ to enjoy more chocolate and candy than you can imagine! And sharks. There will be drinks and food in amongst the the fish tanks. And sharks. There will be the most amazing, crazy, caring individuals coming out to support people living with ALS and their families. And sharks.
Purchase your tickets here! The early bird price is available until August 10.
$275 VIP (discounted 20% to $220)
$125 standard (discounted 20% to $100)
We (and the sharks) are always looking for sponsors! Sponsorship levels from $1,000 to $25,000 are available. Find out more here!
People living with ALS will receive 2 complimentary VIP tickets to attend.
This is a 21+ only event.
The ALS Hope Foundation is a non-profit corporation under section 501(c)(3) of the US Internal Revenue Code EIN 23-3010389
United Way of Greater Philadelphia and Southern New Jersey Donor Choice Number: 13004
Address for Tax ID: P.O. Box 40777 | Philadelphia, PA 19107
ALS Hope Foundation Privacy Policy
Original build by Rachel Patterson
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