Thoughtful Thursdays at North Wales Library: Wendy's Wish 911
Nov
14
5:00 PM17:00

Thoughtful Thursdays at North Wales Library: Wendy's Wish 911

Thoughtful Thursdays at North Wales Library

Join us for an enlightening series of discussions aimed at fostering understanding and support for individuals with ALS and other neurological disabilities.

Event Details:

Host: Wendy Hendrickson
Mission: To educate, raise awareness, and facilitate conversations between first responders and individuals with ALS and other neurological disabilities.

Location: North Wales Library
Event Series: Thoughtful Thursdays

Come together with community members, first responders, and experts in the field for a thoughtful and informative evening. Your participation helps create a more inclusive and informed community.

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Turkey Burner for ALS!
Nov
28
9:00 AM09:00

Turkey Burner for ALS!

ThanksGiving Morning Boot Camp

Date: Thursday, November 28
Time: 9:00 AM - 10:00 AM
Location: Edge Fitness of Plymouth Meeting, 500 W. Germantown Pike

Join us for a special ThanksGiving Morning Boot Camp! Get a head start on your Thanksgiving celebrations with an invigorating workout session designed for all fitness levels. Whether you're a fitness enthusiast or just starting out, this boot camp welcomes everyone.

Non-Members Welcome! This event is open to the public, so bring your friends and family along. It's the perfect way to kick off the holiday while supporting a great cause.

All Proceeds Go to the ALS Hope Foundation and the Joshua Tkachuk Memorial Fund! Every dollar raised from this event will go directly to support ALS research and programs, as well as honor Joshua’s memory. This is a fantastic and touching way to celebrate the holiday while making a difference in the lives of those affected by ALS and remembering Joshua.

Scan to Donate! Can't make it to the event? You can still contribute by scanning the QR code to make a donation.

Don't miss out on this fun and impactful event! See you there!

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Gala of Hope
Apr
5
5:30 PM17:30

Gala of Hope

Join us for our 7th Annual Gala of Hope as we come together to show our gratitude for the unwavering support and dedication of our community in the fight against ALS. 

The Gratitude Gala promises an elegant evening filled with food, refreshing drinks, and lively dancing. This year, we aim to express our heartfelt thanks to everyone who contributes to making a difference in the lives of individuals living with ALS. The event will shed light on the challenges faced by those with ALS, the extraordinary courage they display and the families that support them on a daily basis.

Throughout the evening, you'll have the opportunity to listen to inspiring speakers who will share their personal journeys with ALS, providing a unique and profound glimpse into their lives.

This special night is all about raising awareness and support for the ALS Hope Foundation. You'll get to see firsthand the dedication and efforts of those who are making a difference in the lives of individuals affected by the disease. Your presence and contributions mean the world to us as we continue the fight against ALS and work towards our mission.

We can't wait to share this unforgettable evening of gratitude, celebration, and hope with you. See you there!

Reserve your table now! https://bit.ly/4hlcHBj

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Hope Walks for ALS Family Fun Day
Sep
29
10:00 AM10:00

Hope Walks for ALS Family Fun Day

Join us for
Hope Walks for ALS Family Fun Day!

Temple Ambler Campus on
Sunday, September 29, 2024!

Schedule of Events:

9:30 AM Check-in, get your T-shirt and find your Team!

10:30 AM Welcoming remarks, Walk Chair Mike O'Brien, awards!

10:45 AM Walk begins!!

11:00AM Family Fun Day is also taking place!

12:00 PM Raffle Winners announced!

12:30 PM Walk concludes! Thank you for coming! Go Birds!

Register today!!

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End The Legacy’s Genetic ALS & FTD Community Summit 2024
Jun
7
to Jun 9

End The Legacy’s Genetic ALS & FTD Community Summit 2024

The Genetic ALS & FTD End the Legacy Community Summit will be held in Chicago June 7-9, 2024 with host Les Turner ALS Foundation. This landmark event brings together dedicated team members, those impacted by genetic ALS & FTD, and interested individuals for a weekend of connection, learning, and advocacy.
"Program highlights include:
Connection: Meet and connect with others affected by Genetic ALS & FTD, creating valuable bonds and sharing experiences.
NEALS Training: Learn from top research clinicians and become a NEALS Research Ambassador through the Clinical Research Learning Institute Curriculum.
Skill Building: Attend panels focused on patient advocacy, including lessons from other patient movements, family communication about shared risks, and storytelling for different audiences."

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Research Update and Awards Luncheon
May
5
11:00 AM11:00

Research Update and Awards Luncheon

You are invited to the 20th Annual Research Update and Awards Luncheon!

Please join us at this complimentary event where we will share the latest in ALS research and how your support has helped us keep HOPE on the Horizon! Our guest speaker will be Dr. Jinsy A. Andrews, Associate Professor of Neurology, in the Division of Neuromuscular Medicine, and Director of Neuromuscular Clinical Trials at Columbia University in New York City. 

Sunday, May 5, 2024 11:00am - 2:30pm ET

The Inn at Villanova 601 County Line Road Wayne, PA 19087

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Clinical Research Learning Institute (CRLI)
Mar
15
to Mar 16

Clinical Research Learning Institute (CRLI)

The ALS Hope Foundation will be offering a special educational opportunity, the ALS Clinical Research Learning Institute (CRLI®), on March 15-16, 2024. The CRLI is an intensive 2 day program dedicated to educating attendees on the clinical research process, therapy development, the treatment landscape and advocacy in order to  empower this group to be advocates for ALS clinical research. This program was conceived by Dr. Richard Bedlack through collaboration with the Northeast ALS (NEALS) Consortium including 5 previous Philadelphia programs through the ALS Hope Foundation. People living with ALS along with their caregivers are invited to participate in this program and graduate as "Research Ambassadors" and ALS advocates.

 Learn more about the program on the NEALS website.

Read an article on the CRLI, ALS clinical research learning institutes (ALS-CRLI): empowering people with ALS to be research ambassadors.

People living with ALS (PALS), Caregivers of people with ALS (CALS), and surviving family members are encouraged to apply. All PALS are invited to attend with one caregiver.

The application can be found here. Please submit your application to Jamey Piggott at jamey@alshopefoundation.org.

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Gala of Hope
Feb
24
5:00 PM17:00

Gala of Hope

Join us for the 6th Annual Gala of Hope!

Saturday, February 24, 2024 5:00PM-10:00PM ET


Vie by Cescaphe, 600 N Broad Street, Philadelphia, PA 19130

Join us for an evening filled with good food, drinks, live entertainment, a silent auction and more!

Hear from speakers John Sweeney, a person living with ALS, and Dr. Terry Heiman-Patterson, ALSHF President.


We will be honoring our 25 years of serving the ALS community.

We look forward to sharing this beautiful evening of HOPE with you!

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Tee'd Up for ALS Research
Oct
8
10:00 AM10:00

Tee'd Up for ALS Research

Join us for a truly exceptional event that combines the joy of golf, the delight of brunch, and the spirit of giving! On October 8th, from 10:00 AM to 1:00 PM, we're hosting an event at Top Golf in King of Prussia that promises a memorable day of fun and support for a great cause.

Event Details:
Date: Sunday, October 8, 2023
Time: 10:00 AM - 1:00 PM
Location: Top Golf King of Prussia

What to Expect:

1. Golfing for a Purpose: Whether you're an avid golfer or a newcomer to the sport, this event is designed for everyone. Top Golf's state-of-the-art facilities provide a fantastic golfing experience, ensuring that all skill levels can participate. Tee off for a full three hours, perfecting your swing all while supporting ALS research and the Dr. Robert J. Sinnnot Research Lab.

2. Brunch Delights: As you work up an appetite on the green, enjoy an array of delicious breakfast and brunch dishes as well as our mimosa bar!

3. Making a Difference: All proceeds from this event will go directly towards the Dr. Robert J. Sinnott Research Lab for ALS research. Your participation will contribute to making a significant impact in the lives of those affected by ALS.

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Workshop on Guidance for Pre-Symptomatic Genetic ALS and FTD
Sep
21
to Sep 22

Workshop on Guidance for Pre-Symptomatic Genetic ALS and FTD

This workshop, organized by Michael Benatar and Terry Heiman-Patterson, will bring together diverse stakeholders across the ALS and FTD community, including clinicians, scientists, genetic counselors, ethicists, and members of the at risk genetic ALS/FTD community, to develop guidance for the clinical management of individuals at significantly elevated genetic risk for ALS and FTD. With increasing knowledge of the genetic causes of ALS and the more routine use of clinical genetic testing in the ALS patient population, we are seeing an increasing number of family members seek pre-symptomatic testing. Moreover, many of those found to carry a genetic mutation are seeking clinical care, with questions about off-label use of FDA approved medications and lifestyle modifications. In the absence of good evidence, it is critical to develop guidance for clinicians who are tasked with providing care for these individuals at significantly elevated genetic risk for ALS and FTD. The goal of this workshop is to begin to develop these guidelines and identify the gaps in knowledge.

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Hope Walks For ALS Family Day
Sep
10
10:00 AM10:00

Hope Walks For ALS Family Day

The ALS Hope Foundation is pleased to present the 16th Annual Hope Walks for ALS on September 10, 2023 at Temple University’s Ambler Campus!

This event provides much needed funds to support the clinical, research and educational efforts of the ALS Hope Foundation and is the only walk that supports the work of the ALS Hope Foundation and the team at the MDA/ALS Center of Hope.

Our team wants to see your team!

Click here to sign up your team today!

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ALS Awareness Night at the Lancaster Barnstormers
Aug
17
6:30 PM18:30

ALS Awareness Night at the Lancaster Barnstormers

Join the Lancaster Barnstormers for an exciting evening of baseball and advocacy as we come together with the ALS Hope Foundation to raise awareness and support for ALS (Amyotrophic Lateral Sclerosis) research and patients. ALS Awareness Night at Clipper Magazine Stadium aims to spread awareness about this devastating disease while celebrating the strength and courage of those affected by ALS.

Date: August 17th

Time: Gates open at 5:30 PM Games starts at 6:30 PM

Location:Clipper Magazine Stadium

A portion of all ticket sales will benefit the ALS Hope Foundation!

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Concierto De Esperanza
Jun
17
6:00 PM18:00

Concierto De Esperanza

Únase a nosotros para una velada musical que celebra la música latinoamericana y crea conciencia sobre la ELA y las enfermedades neurodegenerativas en la comunidad latina.

Sábado, 17 de Junio, 6PM ET

La Fundación ALS Hope se complace en presentar el Concierto de Esperanza el 17 de junio a las 6:00 p. m. en el Teatro Esperanza. Este concierto contará con una amplia variedad de música latina que celebra la rica herencia musical de la comunidad y crea conciencia sobre la ELA y las enfermedades neurodegenerativas. Esperamos que más de 300 miembros de la comunidad latina asistan al concierto y disfruten de la noche mientras aprenden sobre la ELA y las enfermedades neurodegenerativas y el Centro de Esperanza de ELA y Enfermedades Neurodegenerativas de la Escuela de Medicina Lewis Katz de la Universidad de Temple, que es un recurso local donde Brindaremos excelencia en la atención de una manera centrada en el paciente y culturalmente sensible.

El concierto presentará nuestro programa de equidad en la salud que se está desarrollando en colaboración con el Centro ALS de Esperanza en la Facultad de Medicina Lewis Katz de la Universidad de Temple. Los datos de la Universidad de Emory y la Universidad de la Commonwealth de Virginia han demostrado que hay retrasos en el diagnóstico de la ELA en la comunidad negra, lo que se traduce en un tratamiento retrasado con los medicamentos disponibles que ralentizan la enfermedad sin detener su progresión. Se está realizando un trabajo similar en la comunidad latina, al igual que la investigación sobre la aplicación de otras intervenciones que prolongan la supervivencia y mejoran la calidad de vida en poblaciones subrepresentadas. Este programa se centrará en la alfabetización de la atención médica sobre la ELA y los trastornos neurodegenerativos tanto para los proveedores de atención médica como para los miembros de la comunidad en las comunidades latinas y negras que rodean la Universidad de Temple. Además, estamos trabajando para proporcionar un fácil acceso centrado en el paciente a la atención multidisciplinaria en entornos culturalmente sensibles que brindarán excelencia en la atención de la ELA y las enfermedades neurodegenerativas.

Todos bienvenidos! Entrada gratuita, se agradecen las donaciones.

El concierto cuenta con: Alexa Anderson, soprano; Elizabeth Patterson, soprano; Celeste Camarena Mojica, mezzo soprano; Sergio Gonzalez, tenor; Gabrielle Rebolla, piano; Igor Vieira, baritone; and The Ensemble of Hope.

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Concierto De Esperanza
Jun
17
6:00 PM18:00

Concierto De Esperanza

Join us for a musical evening at Teatro Esperanza celebrating Latin American music and raising awareness about ALS and Neurodegenerative Diseases in the Latino community.

This concert will feature a wide variety of Latin music celebrating the rich musical heritage in the community while raising awareness about ALS and Neurodegenerative diseases. We are expecting more than 300 members of the Latino community to attend the concert and enjoy the evening while also learning about ALS and Neurodegenerative diseases and the ALS and Neurodegenerative Disease Center of Hope at Temple University Lewis Katz School of Medicine which is a local resource where we will provide excellence in care in a patient centric and culturally sensitive manner.

The concert will introduce our health equity program being developed in collaboration with the ALS Center of Hope at Temple University Lewis Katz School of Medicine. Data from Emory University and Virginia Commonwealth University has shown that there are delays in diagnosis of ALS within the black community which translates to delayed treatment with available medicines that slow the disease down without stopping the progression. Similar work in the Latino community is underway as is research on application of other interventions that prolong survival and improve quality of life in underrepresented populations. This program will focus on healthcare literacy about ALS and neurodegenerative disorders for both healthcare providers and community members in Latino and Black communities surrounding Temple University. Additionally, we are working to provide easy patient-centric access to multidisciplinary care in culturally sensitive settings that will provide excellence in the care of ALS and neurodegenerative diseases.

All are welcome! Admission to the event is free. Donations are appreciated.

The concert features: Alexa Anderson, soprano; Elizabeth Patterson, soprano; Celeste Camarena Mojica, mezzo soprano; Sergio Gonzalez, tenor; Gabrielle Rebolla, piano; Igor Vieira, baritone; and The Ensemble of Hope.

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Research Update and Awards Luncheon
May
21
11:00 AM11:00

Research Update and Awards Luncheon

You are invited to the Research Update and Awards Luncheon.
Join us as we hear from our guest lecturer, Dr. Matthew Harms, learn about the work of the ALS Hope Foundation, and thank our supporters!

Sunday, May 21, 2023 11:00am - 2:30pm ET

The Inn at Villanova 601 County Line Road Wayne, PA 19087

Guest Speaker: Dr. Matthew Harms

Dr. Matthew Harms is a neuromuscular neurologist and neurogenetics expert focused on ALS and related motor neuron diseases.  Dr. Harms’ lab applies cutting-edge genetic sequencing technologies to discover new genes, define the frequency and range of genetic mutations in ALS, and characterize links between specific mutations and specific types or manifestations of ALS.  He is the Director of Precision Medicine Initiatives at Columbia University, Director of the Neurogenetics Program in the Department of Neurology, and Associate Director of the Eleanor and Lou Gehrig ALS Center."

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Gala of Hope
Apr
15
6:30 PM18:30

Gala of Hope

Join us for the 5th Annual Gala of Hope!

Saturday, April 15, 2023, 6:30-11:30PM ET

VIE by Cescaphe 600 N Broad St, Philadelphia, PA 19130

Join us for an evening filled with good food, drinks, live entertainment, a silent auction and more!

Guest speakers to include our president Dr. Terry Heiman-Patterson, Temple Health representatives and Joel Goldhirsch (virtually) a person living with ALS who will update us on the the work we have been doing with his named funds in collaboration with Your ALS Guide.

Our Keynote Speaker, Dr. Stacy Lewin Farber, will share her personal experience with ALS.

We look forward to sharing this beautiful evening of HOPE with you.

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Remembrance and Reflection Memorial Service
Mar
19
11:00 AM11:00

Remembrance and Reflection Memorial Service

The ALS Hope Foundation and the MDA/ALS Center of Hope at Temple Health invite you to attend our Remembrance and Reflection Memorial Service

Sunday, March 19, 2023 11:00AM ET.

This event will be held both virtually and in-person.

The Inn at Villanova University 601 County Line Road, Wayne, PA 19087

Light refreshments will be served.

Please RSVP to Paris DiLorenzo by March 13, 2023 paris@alshopefoundation.org or 215-568-2426.

If you prefer to attend virtually, a zoom link will be sent out when you RSVP.

Photo by John Bussell on Unsplash

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50in1 Bar Crawl for ALS!
Feb
4
6:00 PM18:00

50in1 Bar Crawl for ALS!

Saturday, February 4, 2023

6:00pm - 11:00pm


The 50in1 Bar Crawl for ALS returns across the country! Join Team, Hope on Tap, at Xfinity Live in Philadelphia! Help support ALS Hope Foundation, Hope Loves Company, and the Joan Dancy Foundation and be a part of what will be the largest party in the country that day! This Philadelphia crawl will feature karaoke, silent disco, live bands, a mechanical bull, a silent auction, and many food and drink specials.

Register Now!

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Ginopalooza!
Oct
20
7:00 PM19:00

Ginopalooza!

Come out to Ginopalooza on October 20, 2022 at the Royal to enjoy a celebration of life lived to the max! There will be featured music of Pearl Jam and many others.

Tickets are $25 and all proceeds will benefit The Gino Carosella Fund!

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The ALS Chocolate Meltdown Party!
Sep
23
6:00 PM18:00

The ALS Chocolate Meltdown Party!

  • Adventure Aquarium in Camden, NJ (map)
  • Google Calendar ICS

The ALS Chocolate Meltdown Party is back!

Join us Friday, September 23, 2022 at the Adventure Aquarium in Camden, NJ to enjoy more chocolate and candy than you can imagine! And sharks. There will be drinks and food in amongst the the fish tanks. And sharks. There will be the most amazing, crazy, caring individuals coming out to support people living with ALS and their families. And sharks.

Purchase your tickets here! The early bird price is available until August 10.

$275 VIP (discounted 20% to $220)

$125 standard (discounted 20% to $100)

We (and the sharks) are always looking for sponsors! Sponsorship levels from $1,000 to $25,000 are available. Find out more here!

People living with ALS will receive 2 complimentary VIP tickets to attend.

This is a 21+ only event.

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15th Annual Hope Walks for ALS!
Sep
18
10:00 AM10:00

15th Annual Hope Walks for ALS!

  • Temple University Ambler Campus (map)
  • Google Calendar ICS

The ALS Hope Foundation is pleased to present the 15th Annual Hope Walks for ALS on September 18, 2022 at Temple University’s Ambler Campus! In-person!!

This event provides much needed funds to support the clinical, research and educational efforts of the ALS Hope Foundation and is the only walk in the area that supports the work of the ALS Hope Foundation and the team at the MDA/ALS Center of Hope.

Our team wants to see your team!

Click here to sign up your team today!

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ALS Fantasy Football Fundraiser
Aug
15
to Sep 9

ALS Fantasy Football Fundraiser

LEAGUE IS CLOSED

Join our Fantasy Football League and raise funds for ALS!

For $25, play all season long, have fun and interact others. You will have the option to play on the Yahoo Fantasy Sports or Sleeper App. Sign up by Monday, September 5, 2022.

League winner gets bragging rights and chooses where to donate their winnings back to ALS.

For more information and to sign up click here or email Luciano at LTD37@Drexel.edu!

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4th Annual Run for Hope 5K
Jun
5
8:00 AM08:00

4th Annual Run for Hope 5K

The ALS Hope Foundation is pleased to present the 4th Annual Run for Hope 5K for ALS!

This event will provide much needed funds to support the clinical, research and educational efforts of the ALS Hope Foundation!

We will continue to follow all local, county and state guidelines along the way as safety and health protocols are our highest priority.

Sign up today!

Entry:

Adult (ages 13 and up) early bird pricing before May 15th: $25, pre-race pricing before June 4th: $30 and race day: $35

Children (ages 3-12) early bird pricing before May 15th: $10, pre-race pricing before June 4th: $15, and race day $20

Children 2 and younger: Free


Contact:
Sarah Adickes: sadickes@alshopefoundation.org
Jamey Piggott: jamey@alshopefoundation.org

or 215-568-2426

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The Official Unofficial Lou Gehrig's Day Party at Xfinity Live! - Philadelphia
Jun
3
3:00 PM15:00

The Official Unofficial Lou Gehrig's Day Party at Xfinity Live! - Philadelphia

Come on out Friday, June 3 to The Official Unofficial Lou Gehrig's Day Party at Xfinity Live! - Philadelphia located in the stadium complex across from Citizen’s Bank Park for the largest LG4Day party in the country! Pre-game fun from 3-6 and a watch party from 7-end of game.

All of those living with ALS will be provided FREE parking right at the venue (limited to 15 spaces...reserve ASAP). pALS will receive a minimum of 2 FREE tickets for both the pre-game party (3pm-6pm) and the watch party (7pm-end of game).

Whether you're going to the Phillies game or hanging out with us all night, it's going to be a great night supporting some of the best ALS organizations throughout the country.

Purchase Tickets Today- LG4Day.brownpapertickets.com

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2022 Philadelphia Virtual Clinical Research Learning Institute (CRLI)
May
13
to May 14

2022 Philadelphia Virtual Clinical Research Learning Institute (CRLI)

The ALS Hope Foundation will be offering a special educational opportunity, the ALS Clinical Research Learning Institute (CRLI), to be presented virtually on May 13th and May 14th. The CRLI is an intensive 2 day program dedicated to educating attendees on the clinical research process, therapy development, the treatment landscape and advocacy in order to  empower this group to be advocates for ALS clinical research. This program was conceived by Dr. Richard Bedlack and there have been a total of 15 CRLIs through collaboration with the Northeast ALS (NEALS) Consortium including 4 previous Philadelphia programs through the ALS Hope Foundation. People living with ALS along with their caregivers are invited to participate in this program and graduate as "Research Ambassadors" and ALS advocates. There have been more than 350 Ambassadors trained in the program to date.

 

How do I Apply?

Download the application HERE.

People living with ALS (PALS), Caregivers of people with ALS (CALS), and surviving family members are encouraged to apply. All PALS are invited to attend with one caregiver.

Please submit your application to Jamey Piggott at jamey@alshopefoundation.org.

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POSTPONED- 50in1Day Bar Crawl for ALS
Feb
5
5:00 PM17:00

POSTPONED- 50in1Day Bar Crawl for ALS

The ALS Hope Foundation will be participating in what we hope will be the largest nationwide ALS Bar Crawl ever!


We want to show that when people and groups work together, they can accomplish great things!

We are excited to report that Xfinity Live! will be hosting the Philadelphia crawl! And we will be there!

For more information or to register with the ALS Hope Foundation team, HOPE on TAP, (or your own team) go to this link!

Share your team page with your friends and family to sign up. Start planning your Bar Crawl or join us at XL!

Feel free to reach out to us at info@alshopefoundation.org if you need information on your area or state. We would be glad to help!

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Abington Township Police Association Movember Tailgate & Cornhole Tournament
Dec
5
11:00 AM11:00

Abington Township Police Association Movember Tailgate & Cornhole Tournament

Join the Citizens and Police Together & The Abington Township Police Association for their Movember Tailgate & Cornhole Tournament on December 5, 2021 at North Penn VFW.

Pricing Information

Admission: $20

Tournament: $20

For Tickets and more information please contact: capttailgate.eventbrite.com

COVID Precautions will be in place

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