Back to All Events

End the Legacy's Genetic ALS & FTD Community Summit


  • ALS Hope Foundation PO Box 40777 Philadelphia, PA 19107 (map)

Join us for the End the Legacy Summit!

Building on the success of our first summit in 2024, the Genetic ALS & FTD community is coming together once again for an in-person summit. This is your opportunity to network, connect with others, and gain valuable skills to help build a movement for our lives.

Event Details:

  • Date: June 6 - June 8, 2025

  • Location: The Hotel West & Main, Conshohocken, PA

  • Hosts: ALS Hope Foundation and Temple University

A nominal registration fee of $75 covers food and full conference attendance.

For any questions, please email info@endthelegacy.org.

Purchase Tickets: Click here to secure your spot!

We look forward to seeing you there and continuing our journey together!

Earlier Event: May 18
Run for Hope 5K