Clinical Trials And Research Information

The Northeast ALS Consortium (NEALS) Clinical Trials Database

NEALS' mission is to rapidly translate scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and motor neuron disease (MND).

The ALS Association Research Program

The ALS Association is committed to finding effective treatments and a cure for Lou Gehrig’s Disease.

ALS Therapy Development Institute (ALS TDI) Webinars

Each month, ALS TDI brings together researchers from their lab and others for a conversation about an important topic to patients today. These can be on a specific trial, an emerging technology, or a broad theory gaining notoriety in the effort to combat ALS.

ALS Untangled

ALS Untangled helps patients with amyotrophic lateral sclerosis (ALS) to review alternative and off-label ALS treatments. Instructions for using ALSUntangled, as well as our published and active reviews can all be found on this website.

MDA/ALS Newsmagazine

This magazine features the latest in ALS research news from the Muscular Dystrophy Association.

The MND Research Blog (UK)

This blog aims to provide you with up-to-date information as well as the latest news on ALS/MND research.

The National ALS Registry

The National Amyotrophic Lateral Sclerosis (ALS) Registry program, launched in October 2010, now includes registrants from all 50 states, according to the ATSDR. The registry collects information on PALS by using both existing data and self registration.

Project MINE

To understand the genetic basis of ALS and to ultimately find a cure for this devastating, fatal neuromuscular disease, Project MinE aims to analyse the DNA of at least 15,000 ALS patients and 7,500 control subjects. The resulting 22,500 DNA profiles will be compared.