Clinical Trial and Research Resources

We are incredibly grateful to announce Green Star Exteriors as our Beacon of Hope sponsor for the 2026 Gala of Hope! ✨ To join Green Star Exteriors in supporting our foundation’s mission to make a difference in the lives of people living with ALS, scan the QR code or visit https://charity.pledgeit.org/gala-of-hope ✨ We look forward to seeing you at our gala on April 11th!

We’re proud to announce our new Director of ALS Hope North! 💙 Ashley is excited to expand the mission and presence of ALS Hope throughout the Boston and Northeast area. She is dedicated to advancing the organization’s mission and making a meaningful impact in the lives of those affected by ALS. Please join us in welcoming Ashley to the team!

Exciting news from our office mascot, Dr. Isahpu Coyote! The RSVP date for the Gala has been extended to April 3rd. Secure your seats today by using the link in our bio or visit charity.pledgeit.org/gala-of-hope ✨💙 #galaofhope2026 #alshopefoundation

We are so lucky to have Grammy Nominated artist, Stephen Kellogg performing at this year’s Gala! ✨🎸 A Stephen Kellogg performance is like watching Ted Lasso live. Whether he’s playing music or doing stand-up, his shows leave people inspired and restored. For more than two decades, this wordsmith, TEDx speaker, stand-up comic, author and troubadour, has delighted audiences around the world. Planet Bluegrass calls him “a first class songwriter with a poet’s gift for fresh imagery,” and Counting Crows frontman Adam Duritz says of Kellogg, “there are few people in rock n’ roll who are just so great.” Learn more about Stephen Kellogg on our Gala Website charity.pledgeit.org/gala-of-hope

Thank you Luisa! We appreciate you! #wherehelpandhopemeet #nationalsocialworkmonth

We are so incredibly honored to have Justin Ramirez joining us as our Keynote Speaker this year! Justin is an ALS advocate and the founder of Flock ALS, a movement built on the belief that strength is found in standing together. Born and raised on Florida’s Space Coast, Justin attended the University of Florida and built his career as a nurse, continuing his work in healthcare today as a clinical IT analyst. Diagnosed with ALS in August 2024, Justin and his wife, Mindy, chose to face the journey alongside their children — Landon, Gianna, and Elli — turning uncertainty into purpose and love into action. He reminds us that while ALS may change a life, it never takes away our capacity to care for one another — One Flock, One Fight.

#rarediseaseday #alsawareness #raredoesnotmeanalone #raredoesnotmeaninvisible

On behalf of Ashley Corbin of ALS Hope North and the entire ALSHF team we’d like to share a few words The ALS community has faced some major losses recently, including one incredibly fierce warrior, Leah Stavenhagen. As a young woman who loved exploring life and traveling around the world, she sought expert opinions from all over when she began noticing physical changes taking place. She received the definitive ALS diagnosis in 2019 at the age of 27. As she was learning about the changes she was experiencing and looked for resources to help navigate this next chapter in life, she realized there was a lack of information and awareness for people who are younger and receive an ALS diagnosis. Leah was proactive in all areas of her life, and with the world shutting down from COVID, she used the time to network with other women her age, to bring them together to share ideas, support and resources for living with ALS. From this, she created Her ALS Story: a community of women from around the world who were diagnosed before the age of 35. What started as a small core group, the word spread and the need to make this the most unique and supportive ALS community for women became Leah’s passion. Over the last 4 years, Her ALS Story has held an annual retreat, bringing together these fierce women along with their caregivers for a week of unapologetic joy, pure lessons in life shared, and most importantly a space for unconditional love and acceptance. Each of the more than 100 members of Her ALS Story has benefited from knowing Leah personally and have taken great comfort in this special sisterhood she created. She never let ALS stop her from living her life to the fullest and continued traveling the world with her family, close friends, and always had her loving husband Hugo by her side. Anyone who had the chance to meet Leah, including the team at ALS Hope Foundation got to witness her zest for life. While it’s not easy to process what the world will be like without her being physically present, her legacy will continue to live on through her vision with Her ALS Story and all of the partnerships she created in the ALS community.