The ALS Hope Foundation has generated this list to help people with ALS, their caregivers, and family members to pursue information, research, news, and community. These links are checked on a regular basis, but please email us at info@alshopefoundation.org if any are inoperable.

Educational Video Series

Visit the YouTube playlist

Guides For Daily Living from Our Staff

Adaptive Solutions to Maintain Independence Mark Goren, MS, OTR/L, CHT

Emergency Preparedness Guidelines for People with ALS and Their Families Alisa Brownlee, ATP, Sara Feldman, DPT, ATP, Latoya Weaver, PSC

Symptom Management for PALS MDA/ALS Center of Hope Team

Tips for Holiday Eating Marcie Amerstein, RD, LDN

Coping With Holiday Stress Mary Paolone, MSRN

Communities & Forums For PALS

I AM ALS

“A patient-led, patient-centric movement that will drive collaboration, build and provide critical missing resources for the ALS community, organize and empower the ALS community, and drive increased awareness of ALS in order to generate millions of dollars in new funding to accelerate finding a cure.”

ALS Forums

“The ALS support forum is an all-volunteer driven resource provided free of charge to help anyone directly or indirectly affected by ALS/MND.”

Your ALS Guide

“We hope this website will help answer your questions, connect you to resources, save you money, expand your support network, and generally make life with ALS a little easier.”

International Alliance of ALS/MND Associations

The International Alliance of ALS/MND Associations was founded in 1992 to provide an international community for individual ALS associations from around the world. Their vision is to engage with members to share resources globally, advance awareness, and support PALS worldwide. Their Directory includes contact information for associations in more than 30 countries.

Patients Like Me

“PatientsLikeMe is committed to putting patients first. We do this by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, other patients like you and organizations that focus on your conditions.”

Other Resources For PALS And Families

Hope Loves Company

“Hope Loves Company is the only nonprofit in the US with the unique mission to provide both emotional and educational support to children and young adults who have or have had a loved one battling ALS or Lou Gehrig's disease.” All of their programs and resources are provided at no cost to families affected by ALS. Visit www.hopelovescompany.org or call the HLC office at 609-730-1144 to learn more!

Someone I Love Has ALS: A Family Caregiver Guide

Jodi O'Donnell-Ames of Hope Loves Company teamed up with Dr. Terry Heiman-Patterson and the clinic team at the MDA/ALS Center of Hope, along with other experts, to edit and write Someone I Love Has ALS: A Family Caregiver Guide. The book features chapters with useful information on caregiving, advocacy, services, equipment, and navigating the healthcare system by Dr. Terry Heiman-Patterson, Sara Feldman, Latoya Weaver, and Mary Holt-Paolone.

ALS: An Orientation by Eliot Dunsky, MD

Dr Eliot Dunsky was diagnosed with ALS in 2009. Determined to maintain the best quality of life possible—for as long as possible—he extensively researched the condition and its management. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.