The Genetic ALS & FTD End the Legacy Community Summit will be held in Chicago June 7-9, 2024 with host Les Turner ALS Foundation. This landmark event brings together dedicated team members, those impacted by genetic ALS & FTD, and interested individuals for a weekend of connection, learning, and advocacy.
"Program highlights include:
Connection: Meet and connect with others affected by Genetic ALS & FTD, creating valuable bonds and sharing experiences.
NEALS Training: Learn from top research clinicians and become a NEALS Research Ambassador through the Clinical Research Learning Institute Curriculum.
Skill Building: Attend panels focused on patient advocacy, including lessons from other patient movements, family communication about shared risks, and storytelling for different audiences."