The ALS Hope Foundation will be offering a special educational opportunity, the ALS Clinical Research Learning Institute (CRLI), to be presented virtually on April 30th and May 1st. The CRLI is an intensive 2 day program dedicated to educating attendees on the clinical research process, therapy development, the treatment landscape and advocacy in order to  empower this group to be advocates for ALS clinical research. This program was conceived by Dr. Richard Bedlack and there have been a total of 15 CRLIs through collaboration with the Northeast ALS (NEALS) Consortium including 3 previous Philadelphia programs through the ALS Hope Foundation. People living with ALS along with their caregivers are invited to participate in this program and graduate as "Research Ambassadors" and ALS advocates. There have been more than 300 Ambassadors trained in the program to date.

Some expectations from attendees in this program are to:

1.    Engage in discussion throughout this program and afterward

2.    Work in small groups on site to discuss, contribute, and/or critique assigned trials/papers

3.    Become "Research Ambassadors" and  in this role, to educate and advocate to/for other PALS, CALS & decision makers

4.    Actively blog on the NEALS Clinical Trial Blog with contacts you make as well as utilize NEALS social media

5.    Help us design better trials

How do I Apply?

Download the application HERE.

People living with ALS (PALS), Caregivers of people with ALS (CALS), and surviving family members are encouraged to apply. All PALS are invited to attend with one caregiver.

Please submit your application to Jamey Piggott at jamey@alshopefoundation.org.