Someone I Love Has ALS

 

Someone I Love Has ALS is now available! We would like to send a huge thank-you to Jodi O'Donnell-Ames for all of the love and commitment she poured into this book. We would also like to thank our team members Dr. Terry Heiman-Patterson, Sara Feldman, Mary Paolone, and Latoya Weaver for the care and time they put into their chapters. Finally, thanks to publisher Jack Tatar for believing in and publishing this work.  

All proceeds from the sale of this guide for ALS caregivers will benefit the ALS Hope Foundation and our sister organization Hope Loves Company, a non-profit that offers support services to children who are affected by ALS in the family.

Copies of Someone I Love Has ALS will be available in at the MDA/ALS Center of Hope shortly. Get yours in clinic! You can also purchase the book through Amazon.  If you purchase them through Amazon, don't forget to use Amazon Smile!   

Click on the link below. 

http://www.amazon.com/Someone-Love-Has-ALS-Caregiver/dp/0996459898/ref=sr_1_1?s=books&ie=UTF8&qid=1442669089&sr=1-1&keywords=someone+i+love+has+als

 

Ice Bucket Challenge in LOVE Park

 
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CLICK HERE to watch a video of the ALS Hope Foundation's Ice Bucket Challenge in LOVE Park, featuring an interview with Dr. Terry Heiman-Patterson. Thank you to everyone who took the challenge with us, to CBS Philly for their wonderful coverage, and to 7-11 and the Home Depot for their donations of ice and buckets! 

 

The Joshua Tkachuk Memorial Fund

 
Joshua Tkachuk

Joshua Tkachuk

The ALS Hope Foundation is grateful for the continued support of the Tkachuk family. The Tkachuks tragically lost their son and brother Joshua to ALS at the young age of 18. We were privileged to care for Joshua at the MDA/ALS Center of Hope.

Joshua's sister Jessica is getting married on September 12, 2015. She has asked that her guests please donate to the Joshua Tkachuk Memorial Fund in lieu of gifts. (You can make a donation here). These funds will support the MDA/ALS Center of Hope, where Joshua was loved and cared for. Below is a message from Joshua's family. 

We were blessed with Joshua on October 6, 1993, and ALS took him away on June 5, 2012. This was the most heart-breaking day of our lives… next to the one where they told us that he had ALS and he wasn’t going to survive.          

Before Josh became ill, he was an active, hard-working teenager who loved being around his family and friends.  He was grateful for the simple things in life, like having his own room and going out to dinner.  He enjoyed our family vacations visiting his grandmother in Florida, and playing rounds upon rounds of miniature golf in Ocean City, Maryland.                

He liked being outdoors, working in the yard or taking walks in the woods. He loved to play basketball and golf. He was on the bowling team at school.  He was very good at video games, board games and WII bowling.  (He could bowl a strike from another room!) He enjoyed watching movies, listening to music, and playing his bass guitar. He had recently gotten his learner’s permit and was looking forward to getting his driver’s license.          

He was a senior at W.B. Saul High School for Agriculture where he was studying to become a landscaper. After graduation he planned on going into business with his best friend, Nick. (Nick has since joined the Navy.)

When he wasn’t in school, Joshua spent a great deal of time working at the golf course in the Green Valley Country Club, in Lafayette Hill, Pa.

Joshua was such a treasure. Not only was he a wonderful son, but he was an amazing human being. He was so loving, thoughtful, and kind. He was humble, generous, and caring. He was a dear brother, grandson, nephew, and cousin. He was a best friend, an honor roll student, a good neighbor, and a great co-worker.

Even though Joshua was just 18, he bravely faced and fought the disease with such incredible strength and determination.  And even in the midst of it all he was still able to smile.

Joshua was, and still is the most courageous young man we have ever known and no words could ever express how much we love him, how much we miss him, and how utterly broken our hearts are having lost him to ALS.        

 

"A Swingin' Concert for Hope"

 
Dr. Terry Heiman-Patterson poses with auction items; photo credit: Robert E. Patterson

Dr. Terry Heiman-Patterson poses with auction items; photo credit: Robert E. Patterson

On Thursday, July 23rd, the ALS Hope Foundation and the Media Theatre presented "A Swingin' Concert for Hope." This event featured local crooner Jeff Coon and the Summer Club along with a  17-piece big band, plus special musical guests.

Frank and Ramona Gwynn pose with Hope Ambassador Bernie Parent; Photo Credit: Robert E. Patterson

Frank and Ramona Gwynn pose with Hope Ambassador Bernie Parent; Photo Credit: Robert E. Patterson

Before the show, we enjoyed a VIP dinner with a celebrity meet-and-greet featuring our Hope Ambassador, Flyers legend Bernie Parent. (Thanks, Bernie!) We were also joined by special guest Sue Serio from Fox 29 News, who generously auctioned off an on-air appearance with her during a future weather segment.

During the event, we hosted wonderful silent auction that featured two Apple iWatches, as well as items generously donated by Josh Groban, Cole Hamels, Troy Polamalu of the Pittsburgh Steelers, Ina Garten (Barefoot Contessa), the Flyers, the 76ers, the Union, Painting with a Twist, Del Frisco's Steakhouse, the Walnut Street Theatre, the Media Theatre, and more!

"A Swingin' Concert for Hope" was a huge success and  raised over $55,000! Thanks to our evening's sponsors, Frank and Ramona Gwynn, 100% of the proceeds went to the ALS Hope Foundation. 

Thank you to everyone who came out to the Media Theatre for a great night and saw a fantastic show! Thanks also to our many supporters, sponsors, volunteers, and donors. We are grateful to all who contributed. It paid off in a big way! 

Thanks to our auction donors!
Sue Serio
Philadelphia 76ers
Josh Groban and the Find Your Light Foundation
Ina Garten, Barefoot Contessa
Philadelphia Flyers
The Hamels Foundation
The Philadelphia Union
Hooters (Philadelphia Music Group)
Ramona Gwynn
Delfrisco's Steak House
Painting with a Twist CC
Total Wine and More Cherry Hill
Isos Jewelry
Panera Bread
Target
The Media Theatre
The Walnut Street Theatre
Cakes and Candies by Mary Ellen
Spasso

Thanks to our  generous sponsors!
Frank and Ramona Gwynn
IMC Construction
Eileen Vass
Walter Korn
Offit Kurman
Patterson, Kleher, Harison, Harvey, Branzburg
Monarch

 

2nd Annual Tom MacAdams and Eileen Vitola 5k Run/1 Mile Walk Raises $23,000!

 

On Monday July 20th, Jackie Nicodemo from the ALS Hope Foundation attended a check presentation at Borough Hall in Brooklawn, New Jersey.  The funds received came from the 2nd Annual Tom MacAdams and Eileen Vitola 5k Run & 1 Mile Walk, which took place on April 11th, 2015. 

Event Chairperson Julie McCleary, alongside Dee and Colin MacAdams, presented the ALS Hope Foundation with a check for $23,000. Along with last year's funds, MacAdams and Vitola event has raised over $48,000 in just two years!

All the funds raised by this event will support the ALS Hope Foundation's programs and the MDA/ALS Center of Hope. These funds make a difference to people living with ALS in our region and beyond!

The ALS Hope Foundation would like to thank everyone who participated in the Tom MacAdams and Eileen Vitola Run/Walk, especially our organizers. Your efforts paid off tremendously. We are grateful for your commitment to fighting ALS!