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ALS Hope Foundation
  • What Is ALS?/
  • About ALS Hope /
    • About The Foundation
    • Foundation Staff
    • Programs and Activities
    • Board of Directors
    • Financial Information
    • Funds
  • ALS Center of Hope/
    • About The Center Of Hope
    • Clinic Staff
    • Assistive Technology
    • Stories of Hope
  • Research/
    • Basic Lab Research
    • Clinical Research
    • Research Staff
    • Clinical Trial and Research Resources
    • FALS Research
  • Events/
    • Upcoming Events
    • Become a Volunteer!
    • Gala of Hope 2025
  • News Blog/
  • Resources/
    • Virtual Support Groups
    • PALS Resources
    • Assistive Technology
    • Home and Daily Living Guide
    • About End the Legacy
    • Hope In Action
  • Donate/
ALS Hope Foundation

Hope Is On The Horizon

Research

ALS Hope Foundation
  • What Is ALS?/
  • About ALS Hope /
    • About The Foundation
    • Foundation Staff
    • Programs and Activities
    • Board of Directors
    • Financial Information
    • Funds
  • ALS Center of Hope/
    • About The Center Of Hope
    • Clinic Staff
    • Assistive Technology
    • Stories of Hope
  • Research/
    • Basic Lab Research
    • Clinical Research
    • Research Staff
    • Clinical Trial and Research Resources
    • FALS Research
  • Events/
    • Upcoming Events
    • Become a Volunteer!
    • Gala of Hope 2025
  • News Blog/
  • Resources/
    • Virtual Support Groups
    • PALS Resources
    • Assistive Technology
    • Home and Daily Living Guide
    • About End the Legacy
    • Hope In Action
  • Donate/

Group Led Research

The Desire for Pre Symptomatic Treatment in the At Risk Genetic ALS and FTD Community

Video Explainer for Desire For Treatment Survey: https://youtu.be/gABRQEQ14Bk

Estimates of C9 or f72 Statistics drawn from prior publications including estimated life expectancy for genetic carriers, estimated incidence of C9 or f72 ALS and FTD, Estimated genetic carrier and at risk populations and others

Video Explainer for C9 Estimates Poster: https://youtu.be/dWYxBIPSPx4

 

Genetic Focused Research You May be Eligible For

Available research studies
 
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© The ALS Hope Foundation, 2025
550 Pinetown Road, Suite 120, Fort Washington, PA 19034 
215-568-2426 | info@alshopefoundation.org

 
 

The ALS Hope Foundation is a non-profit corporation under section 501(c)(3) of the US Internal Revenue Code EIN 23-3010389
United Way of Greater Philadelphia and Southern New Jersey Donor Choice Number: 13004

Address for Tax ID: P.O. Box 40777 | Philadelphia, PA 19107

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